News
December 5, 2025
Meet Sarah-Jayne, a research midwife from Medway
February 27, 2026
12pm
Rare Disease Week: In conversation with… Dharmisha, Mum to Sebastian
Join us for a our final event of Rare Disease Week to hear from Dharmisha, Mum to Sebastian, who was the 6th child in the UK to receive treatment for Spinal Muscular Atrophy (SMA) Type 1 in 2021.
February 25, 2026
12pm
Rare Disease Week: In conversation with… Diana, GP and Mum to Sebbie
Join us for a webinar to hear from the amazing Diana, Mum to Sebbie, a 10 year old living with SHINE Syndrome, a rare genetic condition affecting around 250 people worldwide.