News
February 13, 2026
What is SMA and why is genetic testing critical?
News & Events
This section gives you all our latest news and shares details about our upcoming events.
If you have a media enquiry, please contact our communications manager, Nicky Scott on nicky.scott@gstt.nhs.uk
Our Latest News
Our Latest Events
February 27, 2026
12pm
Rare Disease Week: In conversation with… Dharmisha, Mum to Sebastian
Join us for a our final event of Rare Disease Week to hear from Dharmisha, Mum to Sebastian, who was the 6th child in the UK to receive treatment for Spinal Muscular Atrophy (SMA) Type 1 in 2021.
February 25, 2026
12pm
Rare Disease Week: In conversation with… Diana, GP and Mum to Sebbie
Join us for a webinar to hear from the amazing Diana, Mum to Sebbie, a 10 year old living with SHINE Syndrome, a rare genetic condition affecting around 250 people worldwide.
