News
September 24, 2026
From Genetics to Lived Experience: Reflections on our Sickle Cell Awareness...
Join us on Sept 30th for an online webinar which will give you the tools to improve care for people with Spinal Muscular Atrophy, also known as SMA
Join us on October 15th at 12pm for the launch of our report detailing the clinical perspective and lived experiences of women.