I didn’t realise how important it would be to talk to someone else who understood exactly what it's like to live with Epidermolysis Bullosa.
Knowledge has given me the power to take control and make my own decisions.
I would never have known that I carry a change in my BRCA gene if it wasn’t for my daughter.
Cultural traditions meant that I wasn’t really aware of my family history of breast cancer.
If I hadn’t had the genetic test, then I wouldn’t have got the treatment that saved my life.
My Auntie’s gave us the chance that they never had
I’m proud of my epilepsy. It’s made me who I am.
When I got my BRCA diagnosis I wondered what my life would be like.
I’m glad I listened to that nagging feeling!
If I hadn’t had the test, I would have carried that constant background worry with me forever.