Rare Disease Week: In conversation with… Charlotte Doody, Mum to Maisie

As part of Rare Disease Week, join us on Tuesday 24th February from 1-2pm for a special webinar: In Conversation with Charlotte Doody, Mum to Maisie.

Maisie has a rare genetic condition Cardiofaciocutaneous Syndrome (CFC), which can cause symptoms such as heart defects and developmental delays. She is one of only 1,000 people worldwide registered with the same condition.

We have the opportunity to hear from the wonderful Charlotte as she shares her journey from knowing something was not right, through the uncertainty of diagnosis, to finding answers and support:

“Each new diagnosis Maisie has received as part of her syndrome helps guide us on a positive path to give her the best life possible.”