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Westminster Health Forum: Next steps for rare diseases and specialised commissioning
January 21 @ 8:30 AM - 1:15 PM
Next steps for rare diseases and specialised commissioning – policy priorities, utilising genomics, patient engagement and co-ordinating care
This online conference orgainsed by the Westminster Health Forum will discuss the key policy priorities and next steps for improving outcomes in rare diseases and specialised commissioning in England.
Key areas for discussion:
- the UK Strategy for Rare Diseases
- commissioning specialised services – in the context of the pandemic, as well as the priorities going forward
- patient access – improvement for innovative treatments
- genomics – its role in delivering improvements
Dr Beverly Searle (CEO, Unique – The Rare Chromosome & Gene Disorder Support Group)
Professor Dame Sue Hill (Chief Scientific Officer, NHS England)
Professor Matthew Hurles (Head of Human Genetics, Wellcome Sanger Institute)
To view the full agenda and to book a place on the conference, visit the Westminster Health Forum conference page.