PRIVACY AND Terms

NHS Genomic Medicine Service

The NHS South East Genomic Laboratory Hub (SE GLH) is one of seven Genomic Lab Hubs delivering genetic and genomic testing in accordance with the National Genomic Test Directory. Aligned with the SE GLH is the South East Genomic Medicine Service Alliance (SE GMSA) which supports the embedding of genomics in to mainstream care and improving care for our patients. Together the SE GLH and SE GMSA deliver the NHS Genomic Medicine Service for the South East region.  The NHS Trusts that make up the SE GLH and SE GMSA, together with NHS England are responsible as joint controllers under data protection legislation for the processing of personal data to provide the NHS Genomic Medicine Service. To find out more on how we are using personal data to provide genomic testing, view the NHS Genomic Medicine Service national privacy notice.

 

Cookies

Like most websites, we use cookies and similar tools across our website. Cookies are small text files which a website may put on your computer or mobile device when you first visit a site or page. The cookie will help the website to recognise your device the next time you visit.

These cookies do not reveal any personal information about you as a viewer and we do not use any information from the cookies for anything other than identifying how people use our website in order to improve user experience and help users get the most out of the website. We use Google Analytics to create reports to analyse the use of this website.

To find out more about cookies, including how to see what cookies have been set and how to manage and delete them, visit www.allaboutcookies.org.

To opt out of being tracked by Google Analytics across all websites visit http://tools.google.com/dlpage/gaoptout.

Accuracy of information

We work hard to ensure that the information on our website is accurate, complete and kept up to date. However, medical knowledge is constantly changing and we cannot guarantee that all of the information is accurate and consistent with current NHS practice, nor immediately reflected in the content of our website. As such, we reserve the right to make changes to our website at any time.

External links

Links from this site to other websites are provided for information only. We cannot accept responsibility for the sites linked to, or the information found there. A link does not imply an endorsement of a site. Similarly, not linking to a particular site does not imply lack of endorsement.

Copyright

This website contains material which is owned by or licensed to us. This material includes, but is not limited to, the design, layout, look, appearance and graphics. Reproduction is prohibited other than in accordance with the copyright notice, which forms part of these terms and conditions.

In accessing the website, you agree that you will access the content solely for your personal, non-commercial use.

Personal data

Some of the forms on our website, collect personal information from you. In accordance with GDPR, we are asking you to “opt-in” before giving us any personal data. This approach relies on you giving us your consent before sharing any personal details with us.

Personal data is any information about a living individual that can be used to identify the individual, such as name, address, date of birth, email address, photographs or videos.

We only ever use your personal data lawfully and when you have given us your consent to the processing of it. Any information you do submit will be kept in the strictest confidence and will never be passed on to a third party, unless there is a legal obligation to do so.

While we take every precaution to safeguard your personal data submitted to our website, please note that we cannot guarantee the same safeguards regarding the transmission of the information you send over the internet and that this must be done at your own risk.

Under GDPR, you have the right to access, and ask us to amend or delete any of the personal data we hold about you.

Registration

Please ensure that the details provided by you on our “Contact us” form and newsletter sign-up are correct and complete. Please inform us immediately of any changes to the information that you provide to ensure that we can communicate with you effectively. We may not be able to respond to your query if your information is not correct.

Contact us

If you have any questions about our terms and conditions or the practices of this website, please write to us by email at gst-tr.southeastglh@nhs.net.

With any Whole Genome Sequencing (WGS) test ordered, a Record of Discussion (RoD) form will also need to be submitted. This document is to record the patient’s consent for genomic testing and their choice on taking part in research. Guidance on the patient choice conversation can be found here
 
This RoD form will be available for clinicians to download from this webpage. Once completed with the patient, it can be send to the lab with the corresponding test order form and sample.
Tests available to order will be listed in the National Genomic Test Directory. A test order form will soon be made available for clinicians on this webpage to download and complete. This form will include the address of the laboratory that the appropriate sample and completed form needs to be sent to.
 
Until the new Genomic Laboratory Service goes live, please continue to follow existing test order processes.
 
Later this year, the online test ordering tool for Whole Genome Sequencing will be integrated into the National Genomics Informatics System (NGIS) and clinicians will be able to search or filter to find a clinical indication, confirm eligibility criteria and start the test request process for their patient.