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Lunch and Learn: Tuberous Sclerosis Complex (TSC): an update for health professionals
September 28 @ 1:00 PM - 2:00 PM
Tuberous Sclerosis Complex (TSC): an update for health professionals
TSC is a rare genetic condition that causes benign tumours to grow in the brain as well as other areas of the body. This is a lifelong condition, with no cure, but some symptoms can be treated. Join our speakers to hear more about this condition, the testing, care pathways and support available for patients and their families.
Agenda and speakers:
- Dr Nicholas Annear, Consultant in Acute Medicine & Nephrology, SGUH, Overview of Tuberous Sclerosis Complex and Genomic testing
- Lydia Israel, Clinical Nurse Specialist (CNS) for Tuberous Sclerosis Complex, SGUH, The CNS as care coordinator for patients with a rare genetic condition.
- Anna Gaunt, Support Line Manager, Tuberous Sclerosis Association (TSA), Support for anyone affected by Tuberous Sclerosis Complex